Contact: Matt Zenkowich703.319.8382 Email: virginia.nsa@earthlink.net Web site: www.nsastutter.org Area Northern Virginia Fees There is a $35 charge per year to become a member and receive the publication every other month Services Answers questions by phone/email Support group meetings Information and resources  Newsletter  Meetings are the third Tuesday of each month from 7:30–9 p.m. at Unitarian Universalist Congregation of Fairfax, 2709 Hunter Mill Road, Oakton, VA

Contact: Jennifer Goudy, Executive Director703.759.7619 Email: jgoudy@nofasva.org Web site: www.nofasva.org Fees None Services Provides support to families and individuals (adults and teens) living with Fetal Alcohol Syndrome. NOFAS-VA is a non-profit organization and an affiliate of the National Organization on Fetal Alcohol Syndrome. Members have access to NOFAS materials and all the support services they offer.  NOFAS-VA looks forward to reaching out to help families in need, and to aid in the prevention of this 100% preventable spectrum of disorders.

Contact: Kim Crawford, Director of Member Services1.800.906.8723 Email: kim@ntsad.org Web site: www.ntsad.org Area National and international Fees Annual membership contribution of $50 requested, but will accept any amount or waive entirely Services Provides support to families and individuals of any age affected directly or indirectly by an allied disease. The allied diseases include all the lysosomal storage diseases like Tay-Sachs and leukodystrophies like Canavan.

The Parent Support Network of Northern Virginia is made up of dedicated individuals from the local organizations and agencies listed below, along with staff from Care Connection for Children.

Contact: Dana Yarbrough, Executive Director804.828.0352 Email: ptpofva@aol.com Website: www.ptpofva.wordpress.com Area Statewide in Virginia Fees None Services Provides support to parents of children ages 0-22 with disabilities. Answers questions by phone and mail Provides information and resources Matches one family with another family. Callers are matched one-to-one with a parent staff member or a parent in the state or near their region who has participated in advocacy training.

Contact: PEATC703.923.0010 Email: partners@peatc.org Web site: www.peatc.org Area Commonwealth of Virginia. Out-of-state support may be provided to families or professionals having questions pertaining to services and/or schools in Virginia. Fees No fee charged Services Provides support to families and professionals of children ages 0-26 with special needs. Answers questions by phone and email Information and resources Listserv Newsletter Training is provided via community awareness presentations, workshops, parent leadership courses and Internet webinars

Contact: Kevin A. McGrail, President703.391.2251 Email: president@poac-nova.org or Board of Directors Concerns@POAC-NoVA.org Web site: www.poac-nova.org Area Northern Virginia Fees $5 membership. Families of children with autism are voting members. Service providers of children with autism are associate members. Services Provides support to families of children with autism and professionals working with children with autism in Northern Virginia.

972.231.0035 Fax: 413.826.6539 Email: info@prisms.org Website: www.prisms.org Area United States and international countries Fees Yearly membership fee is $30 to join PRISMS and receive newsletters and other resources Services Provides support to families and professionals that have a person with Smith-Magenis in their lives and/or work with or treat these individuals. Supports individuals of all ages.

Contact: Beth Troutman703.346.2414 Email: beth@spedpartners.com Fees Not specified Services Provides support at monthly meetings through sharing experiences and information to parents of special needs children. Speakers are invited to some meetings to present topics of interest. Meeting reminders are sent via email.

Contact: Gloria Starr703.228.1549 Email: gstarr@arlingtonva.us Website: http://www.arlingtonva.us/departments/HumanServices/services/family/proj_family/ HumanServicesServicesFamilyProj_familyProjectFamily.aspx Area Arlington County residents Fees Not specified Services Provides support to parents/caregivers with their children from pre-birth to age five. Classes offered year round in Spanish, English and bilingual. Parents and children learn together through play, exploration, music, reading, nutrition and parenting education.