Pulmonary Hypertension Association Registry (PHAR)

General Information Age Group Adults Status Active Protocol Number N/A Background Information The goal of the PHAR is to measure and improve quality of care (including assessing differences in adherence to evidence-based guidelines and establishing benchmarks for health outcomes) while determining the clinical effectiveness, comparative effectiveness, and cost effectiveness of treatment approaches. Offered At Inova Heart and Vascular Institute Advanced Lung Disease and Transplant Clinic 3300 Gallows Road Falls Church, VA 22042 Principal Investigator Oksana Shlobin, MD Eligibility Information New patients to Inova Fairfax Advanced Lung Disease and Transplant Clinic with either newly diagnosed or established PAH (Group 1) or CTEPH (Group 4) (within 6 months of first outpatient visit) Patient must give informed consent to have data to be abstracted and included in the PHAR Able to understand and speak either English or Spanish Ineligibility Information Any diagnosis other than PAH or CTEPH Contact Information Contact Name Priscila Dauphin Contact Phone 703-776-7128 Contact Email Send Email